IB2014237 ART. ACTORS AND TOOLS OF PREDICTIVE GENETICS: ETHICS AT THE HEART OF GOVERNANCE
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Article: Actors and tools of predictive genetics: ethics at the heart of governance
Anne CAMBON-THOMSEN
Directrice de recherche au CNRS - UMR 1027, Inserm, Univ Toulouse III
Abstract
Genetic prediction is at the cross road of the various meanings of the concept of personalized medicine or medicine 4P: Personalized, Preventive, predictive and participative, also called precision medicine or prevision medicine. This entire frame questions i) the place of data in medicine and its consequences on the relation between patients and doctors; ii) the empowerment of people in the management of their own health; iii) the access to health related data outside the health system (tests directly provided to the consumer over the counter). These various dimensions are analyzed through the phenomenon of massive data and large-scale genetic tests, in particular DNA sequencing in the clinical frame, the blurred limits between categories previously clearly distinct (e.g. research versus clinical care), the recommendations of professional societies of human genetics. The analysis conducted shows that the technological development and the tools of personalized medicine cannot occur in a responsible way without a concomitant analysis of the underlying values at stake.
9782747223362
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The introduction of international practices in Vietnam's management seems to stumble on some cultural behavior. Rather than examine a hypothetical change in values, it is to understand the idea that actors have of the place of the individual and his relation to others in the Vietnamese context. From a comparison line by line of a code of business ethics and its Vietnamese translation, we will highlight in this article two very different conceptions of the relationship to the world and good governance. It is from this understanding of the differences between these two cultural worlds that companies could adapt their management practices to local conditions.
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Availability: 999 In Stock
